Author Topic: MS Speaks going into its 9th year  (Read 198 times)

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Offline agate

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MS Speaks going into its 9th year
« on: June 07, 2014, 08:49:56 pm »
A little over 8 years ago, MS Speaks began. It has evolved from an active message board into something more like a blog. Whatever it is, it's still here, and not everything on the Internet lasts this long.
MS Speaks--online for 17 years

SPMS, diagnosed 1980. Avonex 2001-2004. Copaxone 2007-2010. Glatopa (glatiramer acetate 40mg 3 times/week) since 12/16/20 - 3/16/24.

Offline agate

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  • MS diagnosed 1980
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Why this place is still here
« Reply #1 on: September 21, 2014, 09:39:55 am »
Maybe it's time to ask why I keep this place going.

Why post material that people are perfectly capable of searching out for themselves?

Well, for one thing, I've had considerable experience sifting through the MS material by now. I just might know where to look sometimes when others don't.

Also, I've had MS for 34 years now and might have a few notions about how to deal with it.

And I'd like to think that by keeping up with several MS message boards I'm getting an idea of the kinds of information people are looking for.

Maybe my function is to be a shortcut for people who don't want to do an extensive search on a topic. They can come here and use the search function (see the window at the top right of the page--it works pretty well), or they can look over the topics and save themselves the time and energy it would take to search the entire Internet.

Some of us are addicted to the belief that we ought to be making ourselves useful. This board is one way I have of feeling useful. Those page views here tell me that some people are visiting here and reading.

I realize that many people find MS too depressing to want to read much about, and so this board is never going to be a very entertaining or lively place.

But I'll keep the information coming, FWIW. At least I'm not sending e-mails to everyone every time something appears on this board.

I know of several people who think that  the material they're finding about MS is so valuable that of course you'll want it flowing into your e-mail inbox immediately.

I'm not that sure that what I'm posting deserves to be flooding e-mail boxes, and I know what it's like to be getting more e-mail than you know what to do with. So I don't do that. If you post in a thread here, you can request e-mail notification if there are replies in that thread, however.

Though I'm no scientist, I've dealt with scientific material in my work--translating mathematics and sometimes medical material. I don't claim to understand the more technical abstracts and articles. But when I think they might be of interest, I put them here.



« Last Edit: September 23, 2014, 06:03:19 am by agate »
MS Speaks--online for 17 years

SPMS, diagnosed 1980. Avonex 2001-2004. Copaxone 2007-2010. Glatopa (glatiramer acetate 40mg 3 times/week) since 12/16/20 - 3/16/24.