Author Topic: (Abst.) The burden of MS and patients' coping strategies  (Read 31 times)

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Offline agate

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(Abst.) The burden of MS and patients' coping strategies
« on: June 28, 2017, 04:12:44 pm »
This study found that the longer you have MS, the worse your social support system tends to be.

From PubMed, June 26, 2017:

BMJ Support Palliat Care. 2017 Jun 24.

The burden of multiple sclerosis and patients' coping strategies

Lorefice L1, Fenu G1, Frau J1, Coghe G1, Marrosu MG1, Cocco E1.


Multiple sclerosis (MS) is a chronic disease that mainly affects young people. Patients with MS experience several emotional responses to changed perceptions of themselves and manage this situation in ways focused on controlling the overall burden of disease. This present study aimed to evaluate differences between patients with MS and healthy controls (HCs) in coping styles, identifying the MS clinical features that influence adaptive responses.


Patients with MS, according to the McDonald 2010 criteria, and HCs were recruited. Coping strategies were assessed using the Coping Orientation to the Problems Experienced (COPE-NVI; Italian version) questionnaire.


A cohort of 135 patients with MS (female: 89/135, 65.9%) and 94 HCs (female: 64/94, 68%) were enrolled. Impaired social support and problem solving was noted for MS group (p=0.005). In the MS group, the social support worsened with increasing disease duration (p=0.002) independently of the level of disability. Associations between a higher Expanded Disability Status Scale score and avoidance strategies (p<0.01), as well between avoidance strategies and a previous depression diagnosis (p<0.001) were reported.


Our findings highlight the negative impact of MS on various aspects of patients' life. Therefore, psychosocial interventions are needed to increase adaptive coping mechanisms aimed to manage the burden of MS.
MS Speaks--online for 13 years

SPMS, diagnosed 1980. Avonex 2001-2004. Copaxone 2007-2010.


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