Author Topic: (Abst.) Patient-reported outcomes among DMT continuers and discontinuers in MS patients over 60  (Read 239 times)

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Offline agate

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  • MS diagnosed 1980
  • Location: Pacific Northwest
I'm sometimes tempted to go back on Copaxone too--and I'd opt for the 3x weekly dose.  So far I've backed away from the idea though. It looks as if these drugs aren't nearly as effective--or may not be effective at all--if you're older or have had MS without relapses for quite a while. But some people take the drugs because they do feel that they're helping.


The older I get, the more reluctant I am to start any medicine. I'm also taking a pass on suggested surgeries. And MRIs. The neuro would like to do 3 MRIs on me but luckily she's not really pushing the idea. If I had really difficult or intractable pain or very severe mobility limitations, I'd reconsider.


I've lost some mobility in my right thumb and in my hands in general, and I can't even lift my grandchild now that he's 20 lbs. But these are limitations I can live with. Also, my back goes out quite often when I stand or bend, but the pain goes away if I sit for a while and take it easy and watch how I do the bending and reaching.  These are all the kinds of things I've heard older people talk about for years, and they get along with those limitations.


Hearing is a big problem but I do have hearing aids, and they help. They go on the fritz at times and the repairs can be costly. But I wouldn't be without them.  This too is an aging issue, I'm pretty sure, though I had hearing problems since my late 30s that seem to have been MS-related.


I'm very happy I've been spared the UTIs and sinus infections and falls that were all too common in my years with MS. I haven't fallen in a couple of years now (knock on wood). Maybe the 5,000 IU of vitamin D3 that I take every day is helping? Or maybe it's just another straw I'm clinging to....
MS Speaks--online for 17 years

SPMS, diagnosed 1980. Avonex 2001-2004. Copaxone 2007-2010. Glatopa (glatiramer acetate 40mg 3 times/week) since 12/16/20.

 

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