Author Topic: (MSIF) Progressive MS Alliance Webcast on solving progressive MS  (Read 127 times)

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Offline agate

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  • MS diagnosed 1980
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The MS International Federation had some global networking sessions April 10-12, 2019, and one result was this Webcast involving a panel of experts discussing solving progressive MS. The presenter of the Webcast is a person who has had progressive MS for 30 years:


https://www.msif.org/news/2019/04/27/global-webcast-on-solving-progressive-ms-progress-achieved-and-hope-for-the-future/
MS Speaks--online for 17 years

SPMS, diagnosed 1980. Avonex 2001-2004. Copaxone 2007-2010. Glatopa (glatiramer acetate 40mg 3 times/week) since 12/16/20.

Offline agate

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  • Posts: 9822
  • MS diagnosed 1980
  • Location: Pacific Northwest
This post is well over 2 years old. The International  Progressive MS Alliance hasn't been idle during this time. Well, they've concluded that they're working on how to improve the lives of people with progressive MS and that more work needs to be done....


An abstract from Multiple Sclerosis Journal (December 1, 2021)--"Charting a Global Research Strategy for Progressive MS: An International Progressive MS Alliance Proposal":


https://journals.sagepub.com/doi/full/10.1177/13524585211059766


The contributors to the article include a boatload of neurologists, several representatives of MS Societies, and representatives from Biogen and Genentech.  Maybe these people should talk less and do more, as my 4th-grade math teacher was always telling the class.
MS Speaks--online for 17 years

SPMS, diagnosed 1980. Avonex 2001-2004. Copaxone 2007-2010. Glatopa (glatiramer acetate 40mg 3 times/week) since 12/16/20.

 

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