MS Speaks

Multiple Sclerosis => TREATMENTS => MAYZENT (siponimod) => Topic started by: agate on February 05, 2020, 09:01:04 pm

Title: Woman w/SPMS in Australia unable to get siponimod, turns to GoFundMe
Post by: agate on February 05, 2020, 09:01:04 pm
This article is badly garbled in spots but it concerns an Australian woman (in her 60s, I believe) who has had MS for 35 years. Since hers is SPMS, she would like to take siponimod but was denied coverage through the health care system. This looks like a situation where she is no longer having relapses and so isn't considered a good candidate for siponimod but that part isn't made clear.


From the Glen Innes [Australia] Examiner (February 6, 2020):


Note: In the article PBS = Pharmaceutical Benefits Scheme


https://www.gleninnesexaminer.com.au/story/6616818/glen-innes-ms-survivor-wants-to-be-the-first-australian-to-use-new-wonder-drug/



This notice from MS Australia (December 20, 2019) makes the situation somewhat clearer:


https://www.msaustralia.org.au/news-blogs/latest-news/pbs-listing-siponimod-brand-name-mayzent%C2%AE-spms-not-recommended-pbac