Recent Posts

Pages: 1 2 [3] 4 5 ... 10
21
MS - RESEARCH AND NEWS / ECTRIMS bulletin March 2024
« Last post by agate on March 27, 2024, 10:42:59 am »
ECTRIMS bulletin (highlighting several recent research developments), March 27, 2024:


https://tinyurl.com/3dhbjtrd
22
MS - RESEARCH AND NEWS / (Abst.) High-efficacy therapy discontinuation in patients 50 yrs. and older w/nonactive MS
« Last post by agate on March 26, 2024, 07:24:28 pm »
From PubMed (March 26, 2024)--"High-efficacy therapy discontinuation vs. continuation in patients 50 years and older with nonactive MS":


https://pubmed.ncbi.nlm.nih.gov/38526462/


The conclusion:


Quote
As in younger patients, in patients 50 years and older with nonactive MS, the risk of relapse increased significantly after stopping HETs that impact immune cell trafficking (natalizumab [Tysabri] and fingolimod [Gilenya]). There was no significant increase in risk after stopping HETs that deplete B-cells (anti-CD20 therapy). This result may inform decisions about stopping HETs in clinical practice.[/size]
23
ANNOUNCEMENTS / BrainTalk down
« Last post by agate on March 26, 2024, 03:05:54 pm »
If anyone from BrainTalk visits here, BrainTalk hasn't been available for some hours now. The Facebook page for Braintalk Communities contains a recent post saying that the problem is being worked on.
24
THE PRACTICAL SIDE OF BEING MULTIPLY SCLEROSED / How beneficiaries feel about Medicare Advantage vs. Traditional Medicare
« Last post by agate on March 25, 2024, 09:27:58 pm »
From MedPage Today (February 22, 2024)--"How beneficiaries really feel about Medicare Advantage vs Traditional Medicare":


https://tinyurl.com/2922pwbx
25
THE PRACTICAL SIDE OF BEING MULTIPLY SCLEROSED / Medicaid eligibility for Medicare beneficiaries who need long-term care in home or community
« Last post by agate on March 24, 2024, 09:22:57 pm »
From Medicare Rights (March 21, 2024)--"Medicaid eligibility for Medicare beneficiaries who need long-term care in the home or community":


https://tinyurl.com/3dd2muv5
26
MS - RESEARCH AND NEWS / (Abst.) Clinical correlates of respiratory disorders in patients w/MS...
« Last post by agate on March 23, 2024, 05:00:02 pm »
From PubMed (March 23, 2024)--"Clinical correlates of respiratory disorders in patients with severe multiple sclerosis: A cross-sectional cohort":


https://pubmed.ncbi.nlm.nih.gov/38519434/
27
TREATMENTS / Dr. Aaron Boster rates MS drugs by his opinion of their efficacy
« Last post by agate on March 22, 2024, 09:18:33 pm »


Dr. Aaron Boster's video rating MS drugs according to efficacy. The video seems to have been made a year ago:


https://www.youtube.com/watch?v=BvXEtaF7XB0

28
TREATMENTS / (Abst.) MS, rituximab, hypogammaglobulinemia, and risk of infections
« Last post by agate on March 21, 2024, 09:25:41 pm »
From PubMed (March 21, 2024)--"Multiple sclerosis, rituximab, hypogammaglobulinemia, and risk of infections":


https://pubmed.ncbi.nlm.nih.gov/38507657/
29
THE PRACTICAL SIDE OF BEING MULTIPLY SCLEROSED / Ant-proofing your home (Consumer Reports)
« Last post by agate on March 20, 2024, 09:15:17 pm »
I find that dealing with household pests is a difficult task, physically demanding,  and so I'm always on the lookout for ways to avoid having them in the first place. Tiny black ants have been a problem in the building I live in for years.  The article below has more information on ant control than other articles I've seen.


From Consumer Reports (March 20, 2024)--"How to Ant-Proof Your Home This Spring":



https://www.consumerreports.org/home-garden/pest-control/how-to-ant-proof-your-home-a1171107285/
30
MISCELLANEOUS / Farewell to Glatopa
« Last post by agate on March 19, 2024, 09:25:54 pm »

The neuro will cancel the rx, and I am enjoying the extra time I will now have after stopping Glatopa.

When I asked the neuro if she knew of anyone who could use my 6 remaining Glatopa syringes, she allowed as how most of her patients don't want to do shots and so they aren't using Glatopa. She said they prefer pills or even infusions.


No more lab work for the neuro will be needed--another block of time saved. I was having to go for lab tests for her once a year or so. And unless I opt for an MRI, I won't be going back to her for another year.


Of course if there's some problem, that will change, but I'm hoping to avoid problems.  She is a specialist, highly trained, after all, and I see no need to waste her time with the little problems posed by MS on a daily basis.


Yes, there are many of them, and coping with all of them keeps a person busy. But it's called multiple sclerosis for a reason. There are multiple problems.







Pages: 1 2 [3] 4 5 ... 10