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ANNOUNCEMENTS / In memoriam - some friends lost to MS
« Last post by agate on June 01, 2019, 09:59:28 pm »
Another person lost to MS just recently--not a member of this board but someone I've known online for 18 years, Peg Sestak. She died May 27 at the age of 65. Apparently she died of a stroke but she had had MS for many years.


Then there were these:


From this board - Dave Skorski
                          Joy Victory
                          Janith Hatch
From elsewhere - Vicky Farmer
                           Debe Friedhoff
                           Peg Sestak
                           Bob Kassuhn
                           Joann Brenner
                           Gordon McLaughlin
                           Rita Slater
                           Sally Chrisman
                           Lindsay Kling
                           Gene Droskin
                           Jeanet Schaumburg
                            Nadine Shepherd


I can't remember their exact ages but none had reached the age of 80 by the time of their death and most were much younger.









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GENERAL DISCUSSION - RESEARCH, NEWS / MSAA annual research update (2019)
« Last post by agate on May 31, 2019, 07:22:53 am »
The MSAA annual research update for 2019:


http://bit.ly/MSResearchUpdate
24
ANNOUNCEMENTS / World MS Day, May 30
« Last post by agate on May 30, 2019, 07:27:28 am »
The MS International Federation has declared today to be World MS Day:


https://worldmsday.org/



25
From PubMed, May 30, 2019, "Women who contributed to past research in multiple sclerosis":


https://www.ncbi.nlm.nih.gov/pubmed/31134843
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THE PRACTICAL SIDE OF BEING MULTIPLY SCLEROSED / Re: Free or low-cost hearing aids
« Last post by agate on May 28, 2019, 11:04:18 am »
Another resource on this very important issue--from the American Speech and Hearing Association:


https://www.asha.org/public/coverage/audfundingresources/
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BOOKS / Einstein was known for his cluttered desk...
« Last post by agate on May 27, 2019, 08:43:43 pm »
Now that Marie Kondo now has her own TV show (which I haven't seen), maybe it's time for an update. From the BBC News (May 15, 2019), an article indicating that decluttering isn't always the best way to go:


https://bbc.in/2Mcsb0c
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Before we decide that neuropathy symptoms we are having are due to MS, we might look into any meds being taken. A surprising number of them can contribute to neuropathy.


http://bit.ly/2W5Zt5n


(list from Sit and Be Fit Neuropathy Resources, received by e-mail 5/24/19)
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It's hard for me to do things, particularly if there are too many of them, and answering the phone unnecessarily can be such a nuisance that at times I leave it unanswered. Anyone wanting me badly enough will call back or leave a message. I won't be a slave to my phone.


Robocalls and other telemarketing calls are an invasion of our lives. There is some good advice here:


https://www.fcc.gov/consumers/guides/spoofing-and-caller-id?from=home
30
Concise summary of the MS drugs here in this article in the AAN publication Neurology Today (May 23, 2019)--""There's Much More Available to Treat MS: How the Experts Choose and What They're Still Asking":


https://journals.lww.com/neurotodayonline/Fulltext/2019/05230/There_s_Much_More_Available_to_Treat_MS__How_The.1.aspx
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