Author Topic: Woman w/SPMS in Australia unable to get siponimod, turns to GoFundMe  (Read 102 times)

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Offline agate

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  • MS diagnosed 1980
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This article is badly garbled in spots but it concerns an Australian woman (in her 60s, I believe) who has had MS for 35 years. Since hers is SPMS, she would like to take siponimod but was denied coverage through the health care system. This looks like a situation where she is no longer having relapses and so isn't considered a good candidate for siponimod but that part isn't made clear.


From the Glen Innes [Australia] Examiner (February 6, 2020):


Note: In the article PBS = Pharmaceutical Benefits Scheme


https://www.gleninnesexaminer.com.au/story/6616818/glen-innes-ms-survivor-wants-to-be-the-first-australian-to-use-new-wonder-drug/



This notice from MS Australia (December 20, 2019) makes the situation somewhat clearer:


https://www.msaustralia.org.au/news-blogs/latest-news/pbs-listing-siponimod-brand-name-mayzent%C2%AE-spms-not-recommended-pbac

MS Speaks--online for 17 years

SPMS, diagnosed 1980. Avonex 2001-2004. Copaxone 2007-2010. Glatopa (glatiramer acetate 40mg 3 times/week) since 12/16/20 - 3/16/24.

 

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