Author Topic: Woman w/SPMS in Australia unable to get siponimod, turns to GoFundMe  (Read 22 times)

0 Members and 0 Guests are viewing this topic.

Offline agate

  • Administrator
  • *****
  • Posts: 8564
  • MS diagnosed 1980
  • Location: Pacific Northwest
This article is badly garbled in spots but it concerns an Australian woman (in her 60s, I believe) who has had MS for 35 years. Since hers is SPMS, she would like to take siponimod but was denied coverage through the health care system. This looks like a situation where she is no longer having relapses and so isn't considered a good candidate for siponimod but that part isn't made clear.


From the Glen Innes [Australia] Examiner (February 6, 2020):


Note: In the article PBS = Pharmaceutical Benefits Scheme


https://www.gleninnesexaminer.com.au/story/6616818/glen-innes-ms-survivor-wants-to-be-the-first-australian-to-use-new-wonder-drug/



This notice from MS Australia (December 20, 2019) makes the situation somewhat clearer:


https://www.msaustralia.org.au/news-blogs/latest-news/pbs-listing-siponimod-brand-name-mayzent%C2%AE-spms-not-recommended-pbac

MS Speaks--online for 13 years

SPMS, diagnosed 1980. Avonex 2001-2004. Copaxone 2007-2010.

 

Related Topics

  Subject / Started by Replies Last post
20 Replies
520 Views
Last post July 09, 2019, 08:59:28 am
by agate
0 Replies
91 Views
Last post February 16, 2017, 04:37:42 pm
by agate
1 Replies
96 Views
Last post May 25, 2017, 05:16:24 pm
by agate
1 Replies
65 Views
Last post October 02, 2019, 06:23:25 am
by agate
0 Replies
20 Views
Last post January 18, 2020, 08:32:41 pm
by agate