Author Topic: WELCOME back, Matt2!  (Read 239 times)

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Offline agate

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  • MS diagnosed 1980
  • Location: Pacific Northwest
WELCOME back, Matt2!
« on: July 24, 2014, 08:11:52 am »
Matt, welcome back! Like darumadoll, you're among the earliest members of this board.

I'll go ahead and delete the other registration for you here--the one I transferred over from the board's old format--if that's all right with you. Just so there aren't two user names for any one person.

I checked the log in information for all of the listed members, and about 15 members have actually logged in since this new board opened (November 2013).  Others may have been reading but not logging in.

Dave (Mr. Soul, Mr. Natural) died as you may know, and Cherie (lady_express_44) didn't like the new format and is active on another board these days.

As for the other names on the member list, many are people who used to post here and might return. They were sent e-mails whenever possible, to let them know about the new board. Many e-mails were no longer valid, and so many people didn't get notified.

I went to an MS support group and to sessions of an MS fatigue study being done at the local VA Hospital, and I made sure everyone there got an announcement about this board and its URL. A few of the newer names on the member list are some of those people.

I'd appreciate any suggestions for making this a better and more user-friendly place. 

Matt, I look forward to hearing from you. :)


MS Speaks--online for 12 years

SPMS, diagnosed 1980. Avonex 2001-2004. Copaxone 2007-2010.

Offline Matt2

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Re: WELCOME back, Matt2!
« Reply #1 on: November 10, 2014, 11:38:03 am »
This place is terrific.  I am off in my own world these days though, and am not reading about MS as much as I used to.

I still have CDMS but I still have no MRI lesions, and my neurologist still doesn't know what to make of it...She hasn't seen CDMS but no lesions in many people with still no lesions on MRI after 14 years, but the evidence is far too great for her to accuse me of faking anything, so she doesn't know what it all means.

Offline agate

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  • MS diagnosed 1980
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Re: WELCOME back, Matt2!
« Reply #2 on: November 10, 2014, 11:46:43 am »
Thanks for the compliment.  I realize that MS is a pretty depressing topic that a person doesn't want to dwell on very often.

About your MIR results--there do seem to be people whose MRIs don't show MS lesions for years. I've heard of others like yourself.  They're still learning about MRIs and what they can reveal and not reveal, and most neuros seem aware that a person can have MS but no MRI lesions, though sooner or later  lesions are probably going to show up.

How have you been doing? Are you able to do things you want to do and need to do?

Are you still studying indigenous North American languages?

« Last Edit: November 11, 2014, 05:14:27 am by agate »
MS Speaks--online for 12 years

SPMS, diagnosed 1980. Avonex 2001-2004. Copaxone 2007-2010.