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MS - RESEARCH AND NEWS / (Abst.) Determinants of change in DMDs in patients w/MS...
« Last post by agate on March 14, 2026, 10:45:09 am »
From PubMed (March 14, 2026)--"Determinants of change in disease-modifying drugs in patients with multiple sclerosis: A registry-based study":


https://pubmed.ncbi.nlm.nih.gov/41825974/
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THE PRACTICAL SIDE OF BEING MULTIPLY SCLEROSED / Association between power outages and cardiovascular and respiratory hospitalizations ...
« Last post by agate on March 13, 2026, 03:30:20 pm »
Power outages, even those that last less than 24 hours, can create major difficulties and even hazards if you're disabled or frail.


From PLOS Medicine (March 13, 2026)--"The association between power outages and cardiovascular and respiratory hospitalizations among US Medicare beneficiaries in 2018: A case-crossover study":


https://journals.plos.org/plosmedicine/article?id=10.1371/journal.pmed.1004923#abstract1


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MS - RESEARCH AND NEWS / Rosalind Kalb et al., NAVIGATING LIFE WITH MS
« Last post by agate on March 12, 2026, 02:55:05 pm »
This book has been regarded as one of the most informative works on MS for the patient for a long time, and it seems to have gone into a second edition late in 2025 (originally published in 2015).


From Brain & Life (March 12. 2026), Navigating Life with Multiple Sclerosis:


https://www.brainandlife.org/books/navigating-life-with-multiple-sclerosis?utm_campaign=37932601-Brain%20and%20Life%20monthly&utm_medium=email&_hsenc=p2ANqtz-_5jWOn-mCo7bdEmIHZyzcV1u_rpq78R69yblEidUp0QQKL244tw1jO82yqJmtXum_ZeRxqGuQkW24X51q1Fru-PgDTOA&_hsmi=408466631&utm_content=408466631&utm_source=hs_email
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THE PRACTICAL SIDE OF BEING MULTIPLY SCLEROSED / Over-the-counter hearing aids
« Last post by agate on March 11, 2026, 09:04:36 pm »

MS can affect a person's hearing, and OTC hearing aids are apparently a good (and far less costly) option if your hearing loss is mild to moderate. I haven't tried this type of aid but would strongly recommend getting a hearing aid of some kind before too much time passes if you've been told you would benefit from it. It takes a while to adjust to hearing aids, and the older you are, the harder it is to make that adjustment.

From Consumer Reports (February 11. 2026):
Are Over-the-Counter Hearing Aids Right for You?
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MS - RESEARCH AND NEWS / (Abst.) Epstein-Barr virus antibodies to differentiate MS from other neuroinflammatory diseases
« Last post by agate on March 10, 2026, 09:01:28 pm »

From PubMed (March 10, 2026)--"Epstein-Barr virus antibodies to differentiate multiple sclerosis from other neuroinflammatory diseases":


https://pubmed.ncbi.nlm.nih.gov/41801194/
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NEWS / NY Times claims US was likely responsible for bombing Iranian school, killing 175
« Last post by agate on March 09, 2026, 09:44:08 pm »
For a while now there has been no clear answer to the question of just who was responsible for bombing a school in Iran, killing over 100 students, but the New York Times is now presenting evidence that it was the US, in spite of the administrations claims that it was Iran.


From the New York Times (March 9, 2026)--"US Tomahawk Hit Naval Base Beside Iranian School, Video Shows":


https://www.nytimes.com/2026/03/08/world/middleeast/iran-minab-school-strike.html


I apologize if a paywall makes it difficult or impossible to read the article in the link.



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ANNOUNCEMENTS / World goes too fast if you're slow
« Last post by agate on March 08, 2026, 08:58:43 pm »
My vision is slow. I can't watch any fast-moving activity on a screen (hockey game, crime-drama chase scene, etc.). I just won't know what's happening.


All of my activity has to be slow. When I try to speed up, I drop things, break things, make mistakes, and get too tired.


I live in a slow world. The spring time change is always difficult because when you lose an hour, you're more or less obliged to speed up your day until you catch up with the lost hour.


That was what this weekend was--the "spring forward" time. So my apologies here for not posting so much here just now.
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ANNOUNCEMENTS / NMSS says 1 million people in US now living with MS
« Last post by agate on March 08, 2026, 08:12:52 am »
This statement appeared in a recent fund-raising appeal from the National MS Society and might be surprising:

Quote
Awareness is critical to our cause. Today, nearly 1 million people in the United States are living with MS — more than double previous estimates.

The last estimate I know of (from some years ago) was 400,000.
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KESIMPTA (ofatumumab) / (Abst.) Real-world safety and effectiveness of ofatumumab in MS:...
« Last post by agate on March 06, 2026, 07:18:33 pm »
From PubMed (February 27, 2026)--"Real-world safety and effectiveness of ofatumumab in multiple sclerosis:  A clinic-based study in Australia":


https://pubmed.ncbi.nlm.nih.gov/41743884/
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MS - RESEARCH AND NEWS / (Abst.) Association of changes in activity patterns w/brain atrophy and disability progression in PwMS
« Last post by agate on March 05, 2026, 10:56:15 am »
From PubMed (March 5, 2026)--"Association of changes in activity patterns with brain atrophy and disability progression in people with multiple sclerosis":


https://pubmed.ncbi.nlm.nih.gov/41779964/
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